I was told this week that these days I have at home are my ‘bonus days’, to which I was somewhat appalled. Is that really what it comes down to now? Bonus days? Perhaps I’m wrong in my thinking, but in looking on the positive side of things, there are many people who defy the odds and live another ten years and more! I have to admit, there are days when I say “just shoot me now”, but most days I would never consider thinking these are ‘bonus days’.
That being said, it is a busy household during these ‘bonus days’. They often start with the help of a Personal Support Worker (PSW). You can add into that, visits from: the Occupational Therapist (OT), the Physical Therapist (PT), Hospice, my Nurse, my Doctor, house-keeping and friends & family! Needless to say it is a busy place!
Our home now sports a new bed in the front room of the main floor (for convenient viewing), two walkers and a wheelchair (with interchangeable seat cushions) to help me get around and get into trouble again and three shiny commodes for luxurious bathroom living ;-).
As one can see, this is a little different than my previous, map-trodding days, but it IS better than living in the palliative care unit of the hospital, where it seems that everyone around me was ‘having the last of their bonus days’. I get to sit outside on the back deck and bask in the sunshine, take in the view of the garden flowers, listen to the birds sing to me (yes, they are singing just to me!), enjoy the new barbecue and truly delicious food once again and even have undisrupted sleeps.
Walk-in visitors have dissipated, which is good, as it has allowed me to schedule all of the workers coming into the house, as well as my visitors. Thus, that is the newest chapter in my life. I truly cherish each and every comment that you make on my posts, as they do provide a great deal of encouragement, love and strength. Thank you!