Since arriving back in Canada on Sunday, May 17th, 2015, my life has done a complete about- face. After having an array of chest x-rays, full body CT Scans, full body MRIs and Brain MRIs, the conclusion is this: The BIG C is back in FULL FORCE.
On May 20th, a year to the day that I had my double mastectomy, I was informed that my Triple Negative Breast Cancer has returned to my lungs, core lymph nodes and my spinal cord in the form of Leptomeningeal Carcinomatosis. This type of Metastases can also be read about further here under Leptomeningeal Metastases. Essentially my ‘life sentence’ is 4 – 7 months, depending on my individual circumstances and how I respond to treatment.
I am currently receiving radiation treatments on my spine, as I have no movement in my legs whatsoever. My current preferred mode of transportation is the Green Stork (as shown above), as it moves me rather painlessly from bed to bed (in the above case it was positioning me for my full body MRI. Their hope with radiation and large amounts of steroids is to restore some movement in my legs and lower body by reducing the size and growth rate of the tumors in my spine. They have offered chemo, but admit it will not do much except to perhaps prolong things, with no change in prognosis.
Of course with this new lifestyle has brought new fashion accessories such as diapers, bedpans, styling pyjamas and other core accessories such as warm socks, new jewellery cuffs bearing my name and date of birth for frequent reference and a further need for simplifying.
This is about all I have the energy remaining to write today, but wanted to let all my friends near and far know why I have suddenly gone so ‘quiet’ on Facebook and why the emotions behind my posts have changed direction somewhat. I will endeavour to describe my upcoming path in more eloquent detail moving forward or when I get my next burst of ‘energy’.
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Love to you all and I thank you all for your prayers of support and love. As this news slowly spreads I can already feel the power of prayer, love and support that surrounds me, my husband, children, family and loved ones and we are embracing it with immense gratitude. 🙏🏻 Blessings!